Oops! I slacked. I am a slacker.

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Well, I broke my streak. I fell asleep early last night, which NEVER happens, and didn’t get to post a blog. Never fear, I shall flog myself repeatedly, and post twice today for the slip in character.

Let’s talk stroke symptoms for a moment. GREAT, SOMETHING NEW! I know, I have droned on about this subject for a year now. In my defense, it’s always something new and different. Fun, fun, fun!

I am done with weekly visits to the hospital!
As we all know, I stopped the chemo, and am now on an oral immunosuppressant. They are hoping to see increased improvement and normalcy with my symptoms as they ease me off the Prednisone and focus on the immunosuppressant.
Some things have returned to normal. I have less of a prednisone body/face, my appetite has decreased dramatically, and I miraculously (TMI alert) started my period. The latter was completely unexpected.

Some things have gotten worse. My balance is worse than ever. My walking has gotten wonkier. My eye is more droopy than it has been in a long time. I’m lucky I don’t get mistaken for being publicly intoxicated on the rare occasion I get out.

Notice my right eye. On a positive note, I’m outside!!

Some symptoms have popped up out of nowhere, and I’m not a fan. I’m having shooting pain around my right eye socket. Every once in a while it feels like I’m being stabbed with an icepick from my right eye, into my hairline. The right side of my throat has become very temperature sensitive. I am also having this super-fun experience of being extremely cold sensitive on the right side of my face. When anyone touches me, even with a room- temperature hand, my face registers it as cold. It causes intense shooting pins and needles where I’ve been touched.

Is this normal? I don’t know. Have I told the doctors? Nope. They won’t know if it’s normal either. What I have is so rare, I’m like a guinea pig for all of this. They would just order ANOTHER MRI, and I just had one!

I will say, the shooting pains are intense, and annoying. That part just started today. 

On a positive note: I’m still alive. This is all for a reason. I can take it.

I can do it! You can do hard things too!

I really should be doing my therapy consistently. I do some one day, and then something different the next day. I need to just get my butt in gear, and focus on getting better. That is, ultimately, my job right now.  

It is time for me to say: Be kind. Make wise choices. Calmly use your words. Spread happiness, not hate. I love you all!

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  1. The brain is such a tricky thing….I know it my case it does get better in time, n just finally accepting all of the many things that I can’t control ect.
    U look great mandy!!! I can totally see the difference of puffyness so I’m sure u r filling lots better day by day in that area, I know my skin felt SO tight n uncomfortable when I was on it.
    Super proud of u n ur courage to keep standing no matter how hard this disease has tried to keep u down.
    I love ya, ur an inspiration to me!!!

    Liked by 1 person

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